IEPs, and Moving Trucks, and Appointments, Oh My!

Tomorrow, The Boy’s IEP team meets.  I am extremely lucky to have teachers that get him, and fight for what he truly needs, and a school system that allows us to make the best decisions for him that are not based on the almighty dollar.  I know many districts are not like that (ahemsome rather intimately…), and I know this isn’t the typical IEP experience.  I’m a little nervous about this being the last IEP meeting where I do not have to fight tooth and nail for my son.

kid to do list, list, Be happy and go home

kid to do list, Carissa GoodNCrazy

I also have to make arrangements and get things done — no rest for the wicked on this day.  Securing a rental truck for our big move, speaking to our wedding officiant, doing paperwork for The Boy’s summer day camp… The list goes on and on.

And finally, thanks to our super-accomodating pediatric office (*sarcasm*), I have to pull The Boy out of school at the end of the day, causing him to have to miss Kids Club for his physical appointment.  We’ve prepped him (both at home and at school – I LOVE his teacher!), and he should be OK, but you just never know.  I’ve built in a few treats after the appointment (a trip to Target, and dinner at his favorite restaurant) so that he has “good stuff” to look forward to and get him through.

And so… When I am busy like this, it’s easy to get overwhelmed, but I’m actually doing OK.  I enjoy having a list of things to do, and especially relish the crossing-off of the things on the to-do list.  I feel like every “check!” is bringing us closer to family, summer, and the beginning of something beautiful.

Nothing’s Impossible

The Single Mothers who have Children with Autism facebook page recently posted a reminder that taking a break from your routine and taking care of yourself is important.  Yet many commenters responded bitterly that it just wasn’t possible, and people who say that mean well, but that’s the last thing single moms need to hear.

I disagree.

Nothing's Impossible

Nothing’s Impossible

People, if something isn’t going right in your life, you have to make the change happen.  Do you think a respite fairy is going to land on your head and grant you three Friday evenings to yourself?  I have no nuclear family in the area, yet I am able to take an evening off every once in awhile.  Granted, I make a decent wage, and I get that it can be extremely hard financially – money was extremely tight after my divorce, because I was digging myself out of debt.  I know that feeling.  But there are ways, and you have to find them!  Insisting that it’s impossible and defeating yourself before you even start will turn you bitter, and as a result, everyone around you, including your children will suffer.  I know people like this.  Their negativity is like a virus.  And when they don’t take time for themselves, they are more apt to run out of patience and snap at their kids, become exhausted and ill, and it spirals downward from there.

Some ideas:

  • A break from routine is not necessarily a break from your child(ren).  I know routines are the safety zone for kids with autism, but I have written before about how amazing it was to stop and get myself a sweet tea after a meltdown-y morning – it was FANTASTIC, and it had a lasting effect.  Something small like that is a great way to start treating yourself kindly.  Lord knows our kids won’t always show us the same kindness!
  • I am lucky that my child enjoys latchkey – it is relatively inexpensive through the school, and gives me a much needed break from ALL kids after work, because he doesn’t like to be picked up until 5pm.  I don’t pay any extra for keeping him there until 5pm, and it is an excellent opportunity to unwind a bit before the evening routine begins.
  • Groups like The ARC often have respite grants for members, and membership dues are often inexpensive or even free.  This is a GREAT resource that is oftentimes underutilized, which means you have a great chance of getting some money to help defray the cost of even a family member providing some babysitting for you.
  • Have a friend with a special needs child?  Share the babysitting costs, OR offer to watch the kids for an hour, if she’ll take them next time.
  • Feel like your calendar is too full to take a moment for yourself?  Pencil yourself in.  You need to be a priority in your own life.  There’s no excuse for that.
  • Can’t find quality help?  Ask at your school – sometimes the parapros (or aides) need some extra cash, and already have a relationship with your child.  Maybe your local high school has some National Honor Society students interested in becoming special education teachers (and they probably need service hours and would do it for free).
  • Sometimes just having an extra pair of eyes in the house while you do chores (or sleep!) can be a weight off your shoulders.  Again – get a high school student to come in and be your eyes and ears (or entertainment for the kiddos) while you get stuff done.  The more time they spend with your kids, the more they will learn about what to do – special needs babysitters in training!
  • Bartering is getting big.  Is there something you could do for someone in return for them watching your kiddos for a bit?  Bake some banana bread?  Fix a networking glitch?  Give someone swimming lessons?

If none of these ideas will work for you, I feel for you.  I completely understand that some children’s needs are severe, meaning breaks a just going to be harder to come by.  But you can’t stop trying.  You have to find a way.  We special needs parents are in extreme danger of burnout and battle fatigue, and the very reasons many moms and dads say they “just can’t take a break” are the same exact reasons they must.  Our children need us at our best, so we can handle the worst for a long time to come.

Financial Guide for Single Mothers: A Review

Probably because I have posted a few times in the past about finances and divorce and all that seemingly intimidating but important stuff we ladies need to know, I was approached by Amit Eshet.  He has written a short ebook entitled Financial Guide for Single Mothers, and asked me to review it.  So in full disclosure, I did receive a free copy of his book to review.  But I got an extra for one lucky reader, too.  Read on…

Financial Guide For Single MothersAmit’s guide is only 44 pages, and is completely affordable at $2.99 on Amazon.  The book contains nine short chapters on topics ranging from scholarships and grants to how to deal with your bank and credit card companies.  I found his writing style engaging and informative and the information relatively easy to understand and follow.  I encountered some new resources and things I hadn’t considered as I read, which I think anyone who has to learn the hard way about finances as I did will inevitably learn in guides like this.  It is certainly not all encompassing – I don’t think anyone would expect that from a short ebook, but the tone is encouraging, and I think would be especially inspiring to any newly single mom.

I think the chapter on Money and Emotions is particularly relevant.  I can remember being in a gifted class in elementary school where one of our projects entailed watching TV commercials and understanding which type of pitch they were using to get us to buy things we didn’t need.  What valuable information to know as a consumer, and so many people have no clue that they are succumbing to marketing and emotions!

I also enjoyed the tips in the chapter about teaching your children about finances.  They were very specific and tailored to age levels, and included activities to get your kids thinking about how to be smart with money.

I think Mr. Eshet has a concise guide to inspire newly single moms to not be afraid of finances, and to investigate more about how to handle their money so that they can take advantage of what’s out there, and be smart about companies trying to take advantage of them.

And now for the contest!  Leave a comment about money: why it scares you, something you’ve learned about it, anything!  I will pick one commenter at random to win a copy of the Financial Guide for Single Mothers.  Comments must be submitted by Friday, May 3rd at midnight.

Good luck!

A Wonderful Night

Lugging the instrument...We had another concert tonight, and The Boy performed was excited, performed well, and made us proud.  I didn’t have to ask more than once for him to get dressed when it was time to go, he lugged his baritone out to the car without being asked, and had no problems once he was dropped off with his classmates in the designated room.  When it came time to perform, he went to his spot, and played well, often without having to look at the music (how does he do that??).  He maintained his composure during a piece where some of the other kids in the band had to stomp and scream (although he was struggling not to collapse into a fit of giggles), and was proud to stand for pictures after with his grandparents.  Then we went for dinner at one of our favorite restaurants, and he shared his brownie sundae for dessert.

A non-routine evening is often great fodder for a meltdown, or at the very least, is a source of anxiety, but tonight was pure excitement, joy, pride, and satisfaction.

And since this type of night is my kinda thing, I’m an extra-proud mama tonight.

Baby Steps to Adulthood

Tonight, I had everything prepped for Hummus-Crusted Chicken, went into the fridge to get the hummus, and… no hummus.  How can you salvage that recipe?  Um, you can’t.  I know I bought some on the previous grocery trip, but somewhere along the line, the hummus jumped ship.  So what to do?  I needed to run to the store.

I offered to The Boy the option of staying home, as I have a few times before.  He has always said no, a little afraid of the responsibility, and convinced he isn’t old enough.  But tonight, he was contentedly watching Spongebob videos, and responded that, yes, he would like to stay home, while I took five minutes to run to the store and back.  I reminded him that he could face-time me from his iPad if he needed anything, and I took off.

The whole time, I felt like I had a weight on my chest, but I drove carefully, moved quickly and efficiently into and out of the store, and face-timed him on the way home.  “How ya doin’?”

“Fine.”

“What’re ya doin’?”

“Watching Spongebob.”

“I’m on my way home.”

“OK, Mom.”

“See you in a minute!”

“OK, see you in a minute.”

“Bye!”

“Bye, Mom.”

Movin' On UpAnd a minute later I was home.  “Are you home?” he said when he heard me come in the door.  I responded in the affirmative, told him how proud I was of him for being so mature and responsible, and he was visibly excited and proud of himself.

Will I be taking off by myself to the movies anytime soon?  Hell no.

But this is a proud mama moment for me.  This is a baby step toward adulthood for my little man.

Book Review: Committed by Elizabeth Gilbert

The Kiss - RodinI know there are a lot of Elizabeth Gilbert haters out there, but I think she is actually a very good writer, and just because her books have been popular does not mean that her writing is mediocre. I find her writing style personable and engaging. I enjoyed Eat, Pray, Love, all the while envying her ability to travel like that – would that we could all take a year and visit three amazing places on our bucket list! Some complain that her divorce as portrayed in the book wasn’t “real” enough, even though her divorce isn’t actually the center of the story – her recovery is (and shouldn’t we single gals be supporting each other instead of tearing each other down with “if you think that’s bad” stories?).  When Committed came out, I actually bought it in hard cover (not a planned purchase, just one of those see-it-in-the-bookstore-and-think-what-the-heck purchases).  And I read it and enjoyed it, how it weaves anecdotes with research, and I learned a heck of a lot more about matrimony than I had ever known before. I like books where I learn stuff.

Here I am, on the cusp of getting married again, to someone who is not-scared-of getting married, but shall we say, a little anxious, not having been married since the mid-eighties. And I remembered this book, sitting on my shelf, about a man and a woman facing marriage, and who are also a-little-more-than-anxious about getting married. I decided to read it again, to see if I could gather any insight into my fiancé’s perspective, and explore my own feelings on the subject.

Ms. Gilbert says, “It’s been famously said that second marriage is the triumph of hope over experience, but I’m not entirely sure that’s true. It seems to me that first marriages are the more hope-drenched affairs, awash in vast expectations and easy optimism. Second marriages are cloaked, I think in something else: a respect for forces that are bigger than us, maybe. A respect that perhaps even approaches awe.” I tend to agree, although I think hope is the wrong word here. I think first-time marriages are the epitome of naivete (sorry – can’t think of a better word!), thinking that divorce will just not “happen” to them, because they think they are in control, while second marriages are hopefully careful, acknowledging that there are forces within and around a marriage that are just not in our control, but that being aware, and having that experience may actually give us an edge.

I take exception to her terminology and jaunt into singlemomdom, when she uses that washed up old term “broken home” to describe a single parent family. Although she does stress that her point about kids doing better in two-parent homes is actually in reference to the consistency and stability of a family, rather than the actual numbers of parents, I really just wish she had said that instead of the whole “kids do better in un-broken homes” section.

But the stories about the people she encounters on the other side of the world, and how silly her questions may have sounded, and the over-analyzing of the marriage statistics…  It all makes sense to me.  Because I do the same thing when I am anxious about something.  I’m not (very) anxious about my own second trip down the aisle, but as I said, I get it – I completely understand why anyone would be.

Another point that resonated with me was the discovery that early western marriages were in spite of the Church, who wanted no one between an individual and God, not even a spouse. Early western marriages, then, were alliances between a man and a woman, in effect, against the world. I like that.

I spoke with a friend today who is at the beginning stages of her second divorce, and she is obviously bitter about marriage in general.  She can’t be happy for me, although she is trying – and I understand.  She said, “Why can’t you just be happy together?  Why do you have to get married?”  I had no reply, because I understood.  But my question back is, Would your heart hurt any less if you had never gotten married this second time?  Or would it still be messy and ugly, this breaking up stuff?

In any case, this book is a thinking person’s book for anyone, not just those contemplating a second marriage. Ms. Gilbert tackles tradition, cultural differences, expectation, and anything else a skeptic would research before coming to terms with something as important and life-altering as getting married, for the second time.

No Need to be Nasty

Waiting Room by Melissa Venable

Waiting Room by Melissa Venable

The camp that I’d like to send The Boy to this summer, in lieu of ESY has an 11 page application, part of which must be filled out by his physician. We were just at his doctor’s office last week, getting his booster, but when I approached the desk to ask about getting this filled out, no one seemed interested in helping me, and rather than stand there like an idiot, I decided to leave and call about it later. I called today, and politely explained to the woman on the other end of the phone that I needed to get this paperwork filled out by May 10. She responded that the doctors in the practice didn’t “just do that”, meaning fill out paperwork for camps and such, and that we would have to have a physical. I expected this, and when she asked when his last physical was, I told her August, and she then replied that he would have to wait until a year after that physical, and went to disconnect the phone! I raised my voice slightly, explaining that we were moving in June, so waiting until August was an impossibility, and that I had spoken to someone in her office who had said that it depended on our insurance when another physical could be done. I assured her that we were in the clear according to our insurance, and could we schedule a later appointment for this, due to my son having autism, and hating to miss school? She grudgingly offered up a 3:30 appointment in May, and I asked if there was anything later in the day, as The Boy is still in school at that time. She responded that that was the latest appointment she had before our deadline, adding that the late appointments fill up fast because everyone wants them after school.

I shouldn’t have to fight for an appointment! I shouldn’t have to raise my voice to get the service that I need! If you would like my son to be having a meltdown when he comes for his physical, than by all means, continue to be flippant with me about how everyone wants late appointments!

This is not the first time I have had issue with the office staff in this practice. Two summers ago, I was running a summer camp, and couldn’t leave until the last camper had been picked up. Of course, I had The Boy with me because we had an appointment scheduled about 30 minutes after camp was over. Unfortunately, the parent of this camper was extremely late. I called the office after he had finally been picked up, and explained that I would be 10 or 15 minutes late, knowing that usually one waits at least 45 minutes to see an actual doctor. The staff member proceeded to lecture me about being late, and that they would have to cancel my appointment. I pressed the issue, saying that we would be right there, and couldn’t we just keep our appointment time, and she lectured me again about being responsible about keeping appointment times, refusing to see us. I swore I wouldn’t go back, but when you have a child with special needs, finding a doctor who understands your child’s background is essential, and you often have to make compromises.

I can remember loving the dentist I had as a child, and hating his office staff and his dental hygienists with a passion. And we actually did leave the practice of The Boy’s first dentist because they couldn’t be flexible with appointment times.

Don’t these people understand that they drive people away when they treat them this way? They create anxiety in the patient, and they create mistrust with the patient’s caregiver, namely me! And in these days and times of social media, consumers have no compunction about telling all and sundry about their experiences with your business, especially if they were negative. I just don’t understand how they get away with it, and I’m glad I won’t have to be dealing with this particular office staff again!

So Much Fun the Second Time Around

I’ve written before about what Pinterest has done for (or is it to?) brides, and I am still in awe of how much this one social network has probably changed an entire industry.  I can certainly tell you that I did not have a list of “must have shots” for my photographer at my first wedding, and I didn’t give much thought to the gifts for the bridal party (did I even give gifts?  I’m sure I did, but I don’t remember…).  And while it can be fun looking there for inspiration and ideas for my own second-time shindig, it’s a bit like watching one of the Housewives series… I gawk because I can’t wrap my brain around the fact that people actually live that way, and care so much about what other people think.

Of course I want my loved ones and friends to enjoy themselves, but this is a (ten minute) ceremony to mark our commitment to each other and to celebrate this hopeful new beginning that is The Man and me.  If the people I invite to share the day with us love us, they will enjoy it just for that simple fact.

Maybe a few of these from Walmart for the "bouquet"?

Maybe a few of these from Walmart for the “bouquet”?

I must say, the second time around is very liberating.  There’s so much you just don’t have to worry about (and so many more options!!).  And maybe it’s not so much the fact that it’s a second wedding, but that it’s a really small, casual affair.  Public Park, Friday afternoon, about ten people, including us, The Boy, and the officiant!  When it’s so small, you don’t need 90% of the stuff you have to worry about for a big wedding, and it’s SO cool.

So, yes, I still get lost on Pinterest for a time, but more often than not, I’m giggling at the posts about how to spend “only” $5K on your wedding, 15 “mandatory” wedding photos, and the 6 “rules” a man must follow to ask a girl to marry him…  Oh brother.

Can I Have Another Vacation Please?

Two days back to the routine, and I’m under water.  We had a rough morning, Boy-wise, in part because I had a stressful evening, and failed to make sure he was all set for our morning routine.  Sure enough, the one pair of pants he wanted to wear today got left at dad’s, which resulted in a near-meltdown, resulting in being later than usual to school, and a second near meltdown…  I was toast before we even got to 7:30am.

And stressful things kept popping up at a maddening and unusual rate today.  Now I am finally home, and having to drown out the meowing with my iTunes (his obsession since Christmas has been cats, and even “dressing up” and acting like one)… gradually turning it up every couple of minutes as he gets louder.  Pretty soon I’ll need to put the noise cancelling headphones on…

Here Comes the SunDeep breath, think of positives:

  • I got back on the bike this morning, after being out of my workout routine for about a week and half
  • It’s really difficult to hang on to stress while listening to Here Comes the Sun by The Beatles
  • The near meltdowns of the morning didn’t bleed into The Boy’s school day
  • Tortellini soup for dinner tonight

Savoring Beautiful Moments

One of the easiest ways I have found to de-stress is to store up memories of beautiful moments, and pull them out in times of need.  Bec over at Snagglebox talks about it here.  My memory is for crap, but for some reason, when I am enjoying a moment, I have the ability to stop, tell myself to remember it, and retrieve it later.

One of those moments occurred on my recent vacation down south.  The Man and I went on a day trip, and stopped at a favorite spot, a large garden (which is actually acres of green stuff, and a favorite location for weddings because they are so beautiful).  Near the large pond (home to a few swans), there are trellis-covered walkways, and as we walked directly under one, I suddenly smelled an intensely beautiful bloom.  Seeking the source, I discovered they were directly above me, and I lingered a moment to breathe in the lovely scent, and of course, snap a photo.

Lovely Mystery Flower

Does anyone know the name of it?