Can I Have Another Vacation Please?

Two days back to the routine, and I’m under water.  We had a rough morning, Boy-wise, in part because I had a stressful evening, and failed to make sure he was all set for our morning routine.  Sure enough, the one pair of pants he wanted to wear today got left at dad’s, which resulted in a near-meltdown, resulting in being later than usual to school, and a second near meltdown…  I was toast before we even got to 7:30am.

And stressful things kept popping up at a maddening and unusual rate today.  Now I am finally home, and having to drown out the meowing with my iTunes (his obsession since Christmas has been cats, and even “dressing up” and acting like one)… gradually turning it up every couple of minutes as he gets louder.  Pretty soon I’ll need to put the noise cancelling headphones on…

Here Comes the SunDeep breath, think of positives:

  • I got back on the bike this morning, after being out of my workout routine for about a week and half
  • It’s really difficult to hang on to stress while listening to Here Comes the Sun by The Beatles
  • The near meltdowns of the morning didn’t bleed into The Boy’s school day
  • Tortellini soup for dinner tonight

Savoring Beautiful Moments

One of the easiest ways I have found to de-stress is to store up memories of beautiful moments, and pull them out in times of need.  Bec over at Snagglebox talks about it here.  My memory is for crap, but for some reason, when I am enjoying a moment, I have the ability to stop, tell myself to remember it, and retrieve it later.

One of those moments occurred on my recent vacation down south.  The Man and I went on a day trip, and stopped at a favorite spot, a large garden (which is actually acres of green stuff, and a favorite location for weddings because they are so beautiful).  Near the large pond (home to a few swans), there are trellis-covered walkways, and as we walked directly under one, I suddenly smelled an intensely beautiful bloom.  Seeking the source, I discovered they were directly above me, and I lingered a moment to breathe in the lovely scent, and of course, snap a photo.

Lovely Mystery Flower

Does anyone know the name of it?

Time for High Gear: We Really Are Moving

We have 10 weeks to go before the big move, and it feels like we’re out of time.  We have prepped The Boy, and he has shown increasing acceptance, although he still talks about cloning himself, so that various copies can attend all the middle schools in our area, and one can even play video games all day and visit his current ASD teacher after school.  I don’t disabuse him of these fanciful notions, choosing instead to concentrate on the realistic, and I am getting a strong urge to kick it up a notch with this approach.  I picked The Boy up from his dad today, and began talking about the changes to come, reminding him of everything we had talked about with the moving process.  At first, all seemed OK, and then he began to fret about last spring break.

Labyrinth of MemoryPart of his autism includes never forgetting things that have upset him, which are usually times he has missed school for various reasons.  Luckily he does not get ill often, but there have been times over the years when he has either had to stay home from school or be picked up due to illness (I learned early on never to make appointments for the doctor or dentist that interfered with school, because I would never hear the end of it).  Last spring break, I had to make an agonizing decision about pulling The Boy out of school for a week so that I could have a vacation.  Our breaks did not coincide, and not pulling him out meant I would get no break at all.  It may sound selfish, but I am firmly in the camp that believes that if Mama ain’t happy, ain’t nobody happy, and therefore I decided to pull him out.  I also chose not to tell him that he would be missing school.  Honesty is usually the best policy, but if you don’t have to step in manure, than why would you choose to?  Unfortunately, a parapro let it slip a few days before that he would, indeed, be missing school, and that was just about the worst thing that could happen.  It was as close to the end of the world as it could get for The Boy, and on top of it all, I had “lied” to him.

Needless to say, with the memory he has, especially for tragic events, this has come back to haunt us a time or two, as it did today.  The Boy was in tears about something that had happened a year ago, and it is one of those things about autism I have a hard time wrapping my brain around.

We talked about how it was in the past, couldn’t be changed, and how we had to move on from that.  I promised it would never happen again, and he launched into his next set of fears, having to give away all of his toys, because he is “skipping middle and high school, and going to college”, like Andy from Toy Story 3.  We have talked about how we will be purging some toys before the move, and this is how he interprets it.  So we talked about part of growing up is outgrowing things like baby toys and baby clothes, and that once you learn what those toys have to teach you, they are much more suited to younger children.  I reassured him we weren’t throwing toys away (a constant fear, again, thanks to Toy Story 3), but donating them so that 3rd graders could play with his 3rd grade toys, and so on.  This idea of outgrowing clothes and toys seemed to make more sense to him, and he quieted, thinking about everything I had said.  After a while, his tears turned to smiles, and we were back on track.

Going to the… Gazebo

Exciting news, kids! We’re getting real close to setting a date! Of course it depends on the 4-6 people we’d like to be there, and when officiants and venues are available and such … Planning an albeit tiny wedding in about two months means we have to be a little more flexible, but I’m geeked, especially because I think The Man is or soon will be on board with my modest plans, rather than his idea of a quickie courthouse wedding – nothing wrong with that (and certainly not ruling anything out at this point), but I’m a bit excited to be in the planning stage. A combination of “Whew!” and “Yay!” and “Gulp…”

But mostly “Yay!!!” 😀

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Pick a color, pick a side

Some autism parents are clearly “against” Autism Speaks. They think raising awareness isn’t enough. They think their executive directors make too much money. They think they diminish the people they claim to help with their language. And they think Autism Speaks should do more to help individual families.

The thing is, Autism Speaks has raised awareness at a national level, much more than a local group could hope to do. And because they take in and disburse so much money, their executives make a hefty salary, but not more than similarly structured nonprofits. And they have funded an incredible amount of research. I do agree that they should drop the word “epidemic”, but I am not going to advise others that they should stop supporting the group entirely.

I have no problem lighting it up blue. I do have a problem with people making others feel bad about supporting the group. If you expect a national group to provide services at a local level, you are expecting a lot. There are lots of local groups that do provide services to families, and you can support this great diversity of nonprofits that help on all levels. You don’t have to pick a side.

Happy National Autism Awareness Day!

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And We’re Off!

Spring in the SouthToday, I leave The Boy in the capable hands of Fantastic Babysitter and head south for a week!  Wheee!

Due to a lack of internet access at the new house, my posts may be a bit more intermittent until the second week of April.  (Of course, if you subscribe, or like my facebook page, you’ll be automatically notified when new posts are up… just sayin’…)  I hope you’ll check in anyway and catch up on some older posts (Check out the Archives below and to the right, and the Categories just below that).  And I hope you have a great week!

Love,

Annie

Our Latest (Recurring) Challenge

The MaelstromThe Boy and I are having issues again with things.  There are things that he thinks he needs to either bring or wear to school or other places, yet he can’t keep track of his things in his maelstrom of a bedroom.  Compound that with the fact that he is unable to search for things, and we have this recurring challenge – he will often stand in his room and look for things, but without picking up any of the million things that are lying on his floor or his bed.  “I can’t FIND it!” he will yell, as if his room is a hidden object game where everything is visible if you just look hard enough…

Getting The Boy to clean his room is like pulling teeth.  Getting him to keep it organized is nigh impossible (pulls out thirteen shirts by not being careful about only pulling out the one he needs).  And then he can’t find what he needs, and the cycle continues.

Adding routines is the answer, although this is easier said than done.  “I have to do MORE chores!!” he will exclaim when I ask him to put his clothes in the hamper, as if he can’t dirty his royal hands with them.  Adding incentives to routines — yep!  Come up with yet another chart and stickers, or something.

Tonight we sort out his room again, to look for the blue striped tie he is missing.  Round and round we go, again…

The Other Part of Our Story: The Final Installment

English: A S'mores made with a half a Hershey'...

It was a messy summer.  He left us without a vehicle for the fourth of July, so I had to rent one to get from place to place, and without my knowing, he had given our grill to a friend, so the backyard grilling I had planned for The Boy and I was almost derailed.  But my mom suggested one of those “disposable”-type grills, and we were able to have our hotdogs and s’mores and watch the fireworks on our driveway.  And we were OK.

I had waited so long at first because I had been raised Catholic – ’nuff said.  And then I waited some more because I didn’t want to end up sharing The Boy.  And then I waited some more because I wasn’t sure I could do it – be a single full-time parent to a child with special needs.

And then I realized I was already doing it all by myself.  I didn’t have to share The Boy, and probably wouldn’t (I knew his dad would fail to keep his side of the parenting agreement).  And frankly, religion had left me out in the cold with regards to my son and his needs.  I knew he needed consistency.  I knew he needed to not be yelled at, and not be spanked.  I knew after the failed counseling that none of this would change, and even though I was scared to do it alone, our trip down south reminded me that it could be better.

The ex moved out at the end of the summer.  We were arguing about who was going to pay what bills (I got stuck with piles of bills that had been left unpaid for years, he got stuck with an extra vehicle in his name).  I attempted to buy a car and almost couldn’t because of the state in which he had left my credit.  His mother attempted to sue me for money she had given us for my graduate school.  It was a messy, horrible time.

And then he moved out of the state.  And then he defaulted on the divorce papers.  And then after four months, we were divorced – the judge waived the normal six month waiting period due to the fact that the ex hadn’t paid any support, and had already moved out of the state.  And I had full legal and physical custody of The Boy.

Financially and emotionally, it was a difficult time.  But I always knew I had made the right decision.  And it just kept getting better and better.  Yes, I still have to deal with the ex’s antics from time to time, but as my attorney recently pointed out to me, I can do whatever I want.  And it is so much better at this end of the tunnel.

Nerd Day

Spirit Days: those days at school where kids dress up according to a theme, supposedly to celebrate school spirit, often planned by the school’s student council or some such group.  Again, I don’t often write about school, but it’s bothering me, and when things bother me, I write.  Wednesday this week has been dedicated “Nerd Day”.  Students are encouraged to dress up as nerds, or as some of the kids are already calling it, “Loser Day”.

I’m sure we had something similar when I was in school, and that is where my deep-rooted dislike of this type of spirit day started.  You see, I was a nerd.  Still am. Think about the number one accessory you need to dress up like a stereotypical nerd.  What did you come up with?  I bet 90% of you thought, “glasses”.  Yep.  So I didn’t even need to dress up for nerd day – I was already in costume, whether I wanted to be or not.  Whether I wanted to be identified as a nerd, or not.

I thought the trend was to help kids get away from stereotyping their classmates and people in general.  So it’s OK to do it, if it’s for school spirit?  Can you imagine if they had a “jock” day, or a “Mean Girls” day, or a “Sped” day…  Instead of embracing and celebrating everyone’s differences, we encourage the school to dress up as a stereotype.

Now, as I said, I am still a nerd.  I prefer books to people (in general), dislike partying (in general), was always studious and smart, and enjoyed rather off-the-beaten track music, movies, and senses of humor.  I cried last night when watching the last episode of Dr. Who with David Tennant as Dr. Who, OK??  I’m a nerd, and I own it, and I don’t think it’s a bad thing!

But kids?  Kids are self-conscious, sensitive, undeveloped globs of anxiety.  I think we should put more thought into stuff like this.

*stepping down off my soap box*

What do you think?  Am I overreacting?

***Update: we just received word at the end of the day that tomorrow’s theme has been changed to super hero day.

Do Men “Nest”?

English: a bird nest Français : un nid d'oiseau

a bird nest (Photo credit: Wikipedia)

OK, so no babies involved here, but The Man is super excited about working on our house to get it ready for The Boy and I.  So far on the list:

  • New front door
  • New siding
  • replacement windows
  • planting shrubs
  • fixing and possibly siding the shed/garage
  • replacing insulation under the house

He knows there’s no way all of this will get done before we arrive, but it’s rather sweet that he wants to prepare our new home for us.  And I really get a kick about talking through things together with him, planning and making decisions.  For instance, we had almost decided to finally pick up and plant the shrubs we had bought last year (!) while I am down there for spring break, until I realized that if he was going to re-do the siding, we had better wait on that.  Good thing we talked that one through!

All of this is exciting and actually makes me feel very loved.  It also feels like I’m part of a team, and that we’re working together.