Poppy’s Advice

Hypodermic Needle Pen by Virany

Hypodermic Needle Pen by Virany

Today, The Boy had to get his first shot in a long while.  I know there isn’t a kid on Earth who likes getting shots, but the thought of getting a “poke” sets my kid on edge as soon as he knows about it.  This time, he was so anxious, he created a fictional story about having to go to OT in a nearby city as the reason why I had to pick him up a bit early from school today, instead of the reality of going to his doctor’s office for a booster shot.  In fact, every time we go to the doctor, his first question is, “Do I have to get a shot?”

I have been prepping him since October for this one, and when we’ve talked about it, I offered him the advice my needle-shy dad always gave me for getting through a shot: “Think of something else!”  I also shared with The Boy that Poppy always thinks of Mickey Mouse when he got his shots (or gets blood drawn), and so I usually think of Mickey Mouse, too!

The Boy was anxious as we waited for the nurse, but I reminded him to just think of something else, like Sonic or Steam Boat Willie, and it would be over so quick he wouldn’t believe it.  He ended up getting two pokes, one in each arm, but he squeezed his eyes shut, thought of something else, and looked so brave and adult, I almost got teary.

Afterwards, we went and got ice cream (even though it’s only in the 40s), and stopped at our favorite little toy shop and picked up a small airplane he had had his eye on.  Even with the pokes, it was a Fun Friday.  And I was so proud of my little man (and so geeked my dad’s advice has stood the test of time)!

Celebrate and Have a Good Time

For a little over a year, I have been privileged enough to serve on the board of our local chapter of the ARC.  I got to meet regularly with a group of people committed to filling the needs of people of all ages with developmental disabilities in our community.  We have had no executive director, and the board ends up doing incredible amounts of work to make programs and events run without a hitch.  We have hosted run/walks, teen clubs, movie nights, speakers, and workshops, and have provided grants for training and respite to families in need.

The Boy made creative shapes with his tickets while waiting for the tin-can raffle to be done.

The Boy made creative shapes with his tickets while waiting for the tin-can raffle to be done.

Tonight, we celebrated with our annual membership meeting and dinner dance, and it was a great way to end my term as a board member.  The Boy and I got a little dressed up (after we ran to the store to replace the missing clip-on tie that threatened apocolypse a half-hour before the event), and ate and boogied the night away.  The Boy’s favorite part of this is always the tin-can raffle, largely because he wins just about everything he wants to win.  This year was no exception: he put tickets in for three prizes, and walked away with all of them – Lucky Boy!!  And of course, one of them was an “I love cats” mug – too much serendipity there…

My ticket art was much more boring, and I could only make a triangle.  The Boy said, "That's not even equilateral, Mom."

My ticket art was much more boring, and I could only make a triangle. The Boy said, “That’s not even equilateral, Mom.”

My favorite part is watching all of the kids and young adults dancing, laughing, and having a great time with friends.  They sure know how to party!  A few times, I caught a couple of kiddos posturing in the mirrors on the walls of the banquet hall, admiring themselves and how adult and dressed up they were.  If you want to be reminded about what’s really important in life, and have a great time doing it, these guileless and joyful folks are the ones to show you.

Can I Have Another Vacation Please?

Two days back to the routine, and I’m under water.  We had a rough morning, Boy-wise, in part because I had a stressful evening, and failed to make sure he was all set for our morning routine.  Sure enough, the one pair of pants he wanted to wear today got left at dad’s, which resulted in a near-meltdown, resulting in being later than usual to school, and a second near meltdown…  I was toast before we even got to 7:30am.

And stressful things kept popping up at a maddening and unusual rate today.  Now I am finally home, and having to drown out the meowing with my iTunes (his obsession since Christmas has been cats, and even “dressing up” and acting like one)… gradually turning it up every couple of minutes as he gets louder.  Pretty soon I’ll need to put the noise cancelling headphones on…

Here Comes the SunDeep breath, think of positives:

  • I got back on the bike this morning, after being out of my workout routine for about a week and half
  • It’s really difficult to hang on to stress while listening to Here Comes the Sun by The Beatles
  • The near meltdowns of the morning didn’t bleed into The Boy’s school day
  • Tortellini soup for dinner tonight

Savoring Beautiful Moments

One of the easiest ways I have found to de-stress is to store up memories of beautiful moments, and pull them out in times of need.  Bec over at Snagglebox talks about it here.  My memory is for crap, but for some reason, when I am enjoying a moment, I have the ability to stop, tell myself to remember it, and retrieve it later.

One of those moments occurred on my recent vacation down south.  The Man and I went on a day trip, and stopped at a favorite spot, a large garden (which is actually acres of green stuff, and a favorite location for weddings because they are so beautiful).  Near the large pond (home to a few swans), there are trellis-covered walkways, and as we walked directly under one, I suddenly smelled an intensely beautiful bloom.  Seeking the source, I discovered they were directly above me, and I lingered a moment to breathe in the lovely scent, and of course, snap a photo.

Lovely Mystery Flower

Does anyone know the name of it?

Time for High Gear: We Really Are Moving

We have 10 weeks to go before the big move, and it feels like we’re out of time.  We have prepped The Boy, and he has shown increasing acceptance, although he still talks about cloning himself, so that various copies can attend all the middle schools in our area, and one can even play video games all day and visit his current ASD teacher after school.  I don’t disabuse him of these fanciful notions, choosing instead to concentrate on the realistic, and I am getting a strong urge to kick it up a notch with this approach.  I picked The Boy up from his dad today, and began talking about the changes to come, reminding him of everything we had talked about with the moving process.  At first, all seemed OK, and then he began to fret about last spring break.

Labyrinth of MemoryPart of his autism includes never forgetting things that have upset him, which are usually times he has missed school for various reasons.  Luckily he does not get ill often, but there have been times over the years when he has either had to stay home from school or be picked up due to illness (I learned early on never to make appointments for the doctor or dentist that interfered with school, because I would never hear the end of it).  Last spring break, I had to make an agonizing decision about pulling The Boy out of school for a week so that I could have a vacation.  Our breaks did not coincide, and not pulling him out meant I would get no break at all.  It may sound selfish, but I am firmly in the camp that believes that if Mama ain’t happy, ain’t nobody happy, and therefore I decided to pull him out.  I also chose not to tell him that he would be missing school.  Honesty is usually the best policy, but if you don’t have to step in manure, than why would you choose to?  Unfortunately, a parapro let it slip a few days before that he would, indeed, be missing school, and that was just about the worst thing that could happen.  It was as close to the end of the world as it could get for The Boy, and on top of it all, I had “lied” to him.

Needless to say, with the memory he has, especially for tragic events, this has come back to haunt us a time or two, as it did today.  The Boy was in tears about something that had happened a year ago, and it is one of those things about autism I have a hard time wrapping my brain around.

We talked about how it was in the past, couldn’t be changed, and how we had to move on from that.  I promised it would never happen again, and he launched into his next set of fears, having to give away all of his toys, because he is “skipping middle and high school, and going to college”, like Andy from Toy Story 3.  We have talked about how we will be purging some toys before the move, and this is how he interprets it.  So we talked about part of growing up is outgrowing things like baby toys and baby clothes, and that once you learn what those toys have to teach you, they are much more suited to younger children.  I reassured him we weren’t throwing toys away (a constant fear, again, thanks to Toy Story 3), but donating them so that 3rd graders could play with his 3rd grade toys, and so on.  This idea of outgrowing clothes and toys seemed to make more sense to him, and he quieted, thinking about everything I had said.  After a while, his tears turned to smiles, and we were back on track.

Pick a color, pick a side

Some autism parents are clearly “against” Autism Speaks. They think raising awareness isn’t enough. They think their executive directors make too much money. They think they diminish the people they claim to help with their language. And they think Autism Speaks should do more to help individual families.

The thing is, Autism Speaks has raised awareness at a national level, much more than a local group could hope to do. And because they take in and disburse so much money, their executives make a hefty salary, but not more than similarly structured nonprofits. And they have funded an incredible amount of research. I do agree that they should drop the word “epidemic”, but I am not going to advise others that they should stop supporting the group entirely.

I have no problem lighting it up blue. I do have a problem with people making others feel bad about supporting the group. If you expect a national group to provide services at a local level, you are expecting a lot. There are lots of local groups that do provide services to families, and you can support this great diversity of nonprofits that help on all levels. You don’t have to pick a side.

Happy National Autism Awareness Day!

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Our Latest (Recurring) Challenge

The MaelstromThe Boy and I are having issues again with things.  There are things that he thinks he needs to either bring or wear to school or other places, yet he can’t keep track of his things in his maelstrom of a bedroom.  Compound that with the fact that he is unable to search for things, and we have this recurring challenge – he will often stand in his room and look for things, but without picking up any of the million things that are lying on his floor or his bed.  “I can’t FIND it!” he will yell, as if his room is a hidden object game where everything is visible if you just look hard enough…

Getting The Boy to clean his room is like pulling teeth.  Getting him to keep it organized is nigh impossible (pulls out thirteen shirts by not being careful about only pulling out the one he needs).  And then he can’t find what he needs, and the cycle continues.

Adding routines is the answer, although this is easier said than done.  “I have to do MORE chores!!” he will exclaim when I ask him to put his clothes in the hamper, as if he can’t dirty his royal hands with them.  Adding incentives to routines — yep!  Come up with yet another chart and stickers, or something.

Tonight we sort out his room again, to look for the blue striped tie he is missing.  Round and round we go, again…

Thanks to my Village

Our crisis-of-the-week has apparently averted. Fantastic Babysitter is doing me a huge favor and providing The Boy a place to stay for a night and transportation to meet the ex on the day he requested.  The ex has relented (and apparently forgotten the crazy-making way he treated me/us) and has agreed to pick The Boy up according to the new plan.  How could he say no?

SmileIf left to my own devices, this would not have been possible.  If not for a friend at work who suggested the plan and insisted that I was not “giving in” to the ex if I were able to make it happen, I would have resisted making any concessions, or lifting a finger to aid that man.  If not for Fantastic Babysitter, it wouldn’t even be possible.

And before you raise an eyebrow and think to yourself, “But what if he doesn’t show up?”, we got that covered, too.  Again, thanks to Fantastic Babysitter (Now do you see why I call her that??).

Thanks to my friends who help me whether I know I need it or not.  Thanks to my village, that helps me raise my child and be a better mom (and a better person).  Thanks to them, this will turn out OK.

Self Advocacy via PowerPoint

The Boy has a love affair with PowerPoint.  He could whip one up faster than just about anyone, and it would be engaging (if you were interested in Sonic the Hedgehog or Mario and Luigi), and you would say, “An 11 year old made that?”  In fact, I had no sitter during an evening school event the other night, so I set The Boy up in a quiet office space with my computer and PowerPoint primed and ready to go.  Not only was he self-sufficient the whole time I was occupied, he wasn’t ready to go when I was done because he wasn’t finished.

Our kids (those with autism) have so many fascinations, that those of you with kids on the spectrum are saying, “Yeah, so??” because your own kids have talents and abilities, and often they don’t seem to have any real purpose, right?

This past week, I got The Boy’s report card (pretty stellar, besides the “need improvement” in doing homework part – haha!), and his IEP progress report (again pretty awesome), and had parent teacher conferences with both his ASD and general ed teachers.  And I was made aware that The Boy’s writing has developed by leaps and bounds this year.  Writing is difficult for kids on the spectrum, because they have a hard time creating and voicing new ideas.  For example, when asked to give characters a name (even back when we bought a Webkinz!), he becomes almost paralyzed until you suggest something, and then he will automatically agree to whatever name you suggest.  Creating new ideas is hard.  Also, staying on topic is hard.  But The Boy is doing extremely well, and even developing his own “voice” in his writing, which is something that even NT kids (and adults) have a hard time with! (I am SO excited about this, being a writer-type myself.)

In any case, here’s the point of my rambling, the “why” of this whole thing: The Boy used PowerPoint to help himself become a better writer.  He developed his own graphic organizer using PowerPoint to help him with paragraph structure, and uses it daily to write his journal.  He doesn’t need to be asked, and he didn’t get any help.  And it is working.  And I am so incredibly proud of my self-advocate.

PPGO

As Prepared as a Boy Scout

To-do list book.

To-do list book. (Photo credit: koalazymonkey)

I have done what I can to prepare for possibilities.

  • I have prepared The Boy for the possibility of coming with me rather than going to his dad’s for spring break.  “But I’ll miss the cats!” he whimpered.  After a few minutes, he was OK.
  • I have offered the ex a way to pick The Boy up on the day he prefers, and he has not responded.  You see, I have deflated his sails, and he doesn’t know how to respond without losing face.
  • I have contacted my attorney to make sure we are as prepared as possible if (and that’s a big if) he decides to follow through.

I can’t do any more besides try to let the anxiety go. (As Grandma always said, “Do your best and that’s all you can do.“)

Today, I am back to running errands, planning to do taxes, getting an oil change.  Taking care of things that need to be taken care of before a trip, and in so doing, attempting to let the stress of the last week go, come what may.  I am as prepared as possible.