The school district where we live, and where The Boy has attended school since his first day of kindergarten is known in our region of the state as having a very strong Autism Spectrum Disorder (ASD) program. It was why … Continue reading
The school district where we live, and where The Boy has attended school since his first day of kindergarten is known in our region of the state as having a very strong Autism Spectrum Disorder (ASD) program. It was why … Continue reading
The Boy is 10, soon to be 11, and he cannot tie his shoes. We have tried over the years to show him how, but he’s just not interested. And when he’s not interested, he’s not going to learn much. … Continue reading
The ex is infamous for cancelling plans. And due to the fact that he only sees his son for four weeks out of the year at most (this year it has been one week), when he cancels plans, it is … Continue reading
I enjoy writing. Always have. I took a creative writing course in college and had a great deal of fun, especially with poetry. Fun does not necessarily translate into good, so I apologize in advance. I’m not the type to subject my poetry on others, but when I ran across this poem that I must have written in a desperate moment, I’m guessing about three years ago (based on the Wubbzy reference), I thought it might resonate with others going through similar desperate moments.
Autism
Short
definition:
A neurological disorder…
Long
definition:
Something not quite
right. Speech delay
Speech therapy, Occupational
therapy (hypersensitive, hyposensitive,
Gross motor – Gross like large not like
yucky, fine motor) From flashcards
to reading two years ahead
Obsess, obsess, Obsession
for months (Pizza rolls every single
night for dinner) (Wubbzy AGAIN?)
laughing, joking, never gets
old. Still no empathy.
Logical, linear, Spock-like, must
follow the rules, follow the law, follow the
schedule. No deviation, no changes, no
surprises, no fire drills or we derail.
anticipate, anticipate, anticipate
lay the clothes out, take the meds, follow the
schedule. Nothing dirty, no holes, no stains,
hide the clothes when they get too small. Still
might come back to bite you,
kick you, pull your hair, scream, cry, lie
down in the middle of the aisle
suffer the stares, the whispers, the grandma shaking her head, “Mm, mm, mm.”
(must learn that Vulcan death grip – what happens
when he gets bigger?)
What happens next? One day
One day at a time, one day
one day
Breathe, exhale and relax.
I came to know about Special Dreams Farm in a very roundabout way. I happened to go to a party hosted by a woman I’ve known and worked with for a long time, and one of her aunts happened to … Continue reading
Sometimes, I look back at the fun things I did as a kid and realize, “Holy crap. My son has probably never done that!” And I have a moment of disbelief, thinking, “This has nothing to do with autism, and … Continue reading
Every family with autism has a “story” — not really about them, but about how they came to know about autism, and the battles they have fought, sometimes with insurance companies, sometimes with money, and always with their own emotions. … Continue reading
I’ll be honest, I skipped the big gym-speech, where parents are packed in like sardines, it’s hot, they talk about the same things every year, introduce the staff, and you can’t hear anything anyway because of all the people who … Continue reading
The Boy and I have created a tradition called Fun Friday. It was born out of some evening scheduling problems we had which basically boiled down to The Boy thinking I could drive him all over God’s Green Earth to … Continue reading
About two weeks ago, I followed through with my plan for breaking the news to The Boy that his former teacher had died. We went through the social story, and I reminded him about The Man’s mother’s death and what … Continue reading