Lock Laces: The Greatest Thing Since Sliced Bread

The Boy is 10, soon to be 11, and he cannot tie his shoes.  We have tried over the years to show him how, but he’s just not interested.  And when he’s not interested, he’s not going to learn much.  … Continue reading

A Poet in My Own Mind: “Autism”

I enjoy writing.  Always have.  I took a creative writing course in college and had a great deal of fun, especially with poetry.  Fun does not necessarily translate into good, so I apologize in advance.  I’m not the type to subject my poetry on others, but when I ran across this poem that I must have written in a desperate moment, I’m guessing about three years ago (based on the Wubbzy reference), I thought it might resonate with others going through similar desperate moments.

Autism

Short

definition:

A neurological disorder…

Long

definition:

Something not quite

right.  Speech delay

Speech therapy, Occupational

therapy (hypersensitive, hyposensitive,

Gross motor – Gross like large not like

yucky, fine motor) From flashcards

to reading two years ahead

Obsess, obsess, Obsession

for months (Pizza rolls every single

night for dinner) (Wubbzy AGAIN?)

laughing, joking, never gets

old.  Still no empathy.

Logical, linear, Spock-like, must

follow the rules, follow the law, follow the

schedule.  No deviation, no changes, no

surprises, no fire drills or we derail.

anticipate, anticipate, anticipate

lay the clothes out, take the meds, follow the

schedule.  Nothing dirty, no holes, no stains,

hide the clothes when they get too small.  Still

might come back to bite you,

kick you, pull your hair, scream, cry, lie

down in the middle of the aisle

suffer the stares, the whispers, the grandma shaking her head, “Mm, mm, mm.”

(must learn that Vulcan death grip – what happens

when he gets bigger?)

What happens next? One day

One day at a time, one day

one day

Breathe, exhale and relax.

Our Story

Every family with autism has a “story” — not really about them, but about how they came to know about autism, and the battles they have fought, sometimes with insurance companies, sometimes with money, and always with their own emotions.  … Continue reading

Back to School Night

I’ll be honest, I skipped the big gym-speech, where parents are packed in like sardines, it’s hot, they talk about the same things every year, introduce the staff, and you can’t hear anything anyway because of all the people who … Continue reading

Fun Friday

The Boy and I have created a tradition called Fun Friday.  It was born out of some evening scheduling problems we had which basically boiled down to The Boy thinking I could drive him all over God’s Green Earth to … Continue reading