I’m one of those moms who orders the costume, even if it’s a bit expensive, and we order it early. Why? We order early, in case there’s a size issue, or any problem of any kind that could be the … Continue reading
I’m one of those moms who orders the costume, even if it’s a bit expensive, and we order it early. Why? We order early, in case there’s a size issue, or any problem of any kind that could be the … Continue reading
The school district where we live, and where The Boy has attended school since his first day of kindergarten is known in our region of the state as having a very strong Autism Spectrum Disorder (ASD) program. It was why … Continue reading
Disclaimer: I am on the board of our local Arc chapter, so my views may be biased. I just want to share a bit about the fun we had at our Fun Fitness Walk, and encourage you to support your … Continue reading
The Boy is 10, soon to be 11, and he cannot tie his shoes. We have tried over the years to show him how, but he’s just not interested. And when he’s not interested, he’s not going to learn much. … Continue reading
What would I do with an entirely kid-free day? Visit the art museum, check out the prints, line drawings, and photography Pack myself a picnic, go to the park, and read Go shopping with a friend Have my very own … Continue reading
I enjoy writing. Always have. I took a creative writing course in college and had a great deal of fun, especially with poetry. Fun does not necessarily translate into good, so I apologize in advance. I’m not the type to subject my poetry on others, but when I ran across this poem that I must have written in a desperate moment, I’m guessing about three years ago (based on the Wubbzy reference), I thought it might resonate with others going through similar desperate moments.
Autism
Short
definition:
A neurological disorder…
Long
definition:
Something not quite
right. Speech delay
Speech therapy, Occupational
therapy (hypersensitive, hyposensitive,
Gross motor – Gross like large not like
yucky, fine motor) From flashcards
to reading two years ahead
Obsess, obsess, Obsession
for months (Pizza rolls every single
night for dinner) (Wubbzy AGAIN?)
laughing, joking, never gets
old. Still no empathy.
Logical, linear, Spock-like, must
follow the rules, follow the law, follow the
schedule. No deviation, no changes, no
surprises, no fire drills or we derail.
anticipate, anticipate, anticipate
lay the clothes out, take the meds, follow the
schedule. Nothing dirty, no holes, no stains,
hide the clothes when they get too small. Still
might come back to bite you,
kick you, pull your hair, scream, cry, lie
down in the middle of the aisle
suffer the stares, the whispers, the grandma shaking her head, “Mm, mm, mm.”
(must learn that Vulcan death grip – what happens
when he gets bigger?)
What happens next? One day
One day at a time, one day
one day
Breathe, exhale and relax.
You know by now that I’m a bit of a techie. Simply put, pieces of paper get lost, while my phone rarely does. If I can keep track of things on my phone, I am more likely to remember them. … Continue reading
The Man and I took an incredible trip to San Francisco in 2010. We spent a week, and on our ramble to the Mission District, we stopped in to take a peek at the Creativity Explored studio and gallery. For the life of me, I cannot remember how I had heard about this place, but it was, for me, the highlight of the trip.
Creativity Explored is a 501(c)(3) nonprofit organization that provides space, materials, as well as access to mentor artists for adults with developmental disabilities who enjoy expression through making art. The organization also organizes exhibits and maintains an online shop through which the artists can sell their work, providing income, and an opportunity for self advocacy.
At first, The Man and I looked around the gallery, finding several pieces we wanted to take home. The person behind the desk asked if we wanted to go in the studio. We looked at each other and said, “Yes! Is it open to the public?” He assured us it was, and we went through the entryway into the studio. There were about 15 adults working on various projects, some with mentor artists at their side, some without. We wandered through the workspace trying to peek at the works in progress without being too intrusive. Some of the artists were talking or singing to themselves. Some were oblivious to our presence, others were wary, and still others waved and welcomed us. One artist in particular, Peter, greeted us warmly and enthusiastically, giving us a tour of the studio, and lead us to the kiln, telling us all about the firing process, and showing us his just-fired work. He was very proud, and very happy to have an audience.
We left Creativity Explored, shortly after, realizing we had spent over an hour there. We were both pretty quiet for awhile, and then remarked to each other what an amazing experience that had been. And the art! The art gave me such a new perspective, because these artists were clearly communicating their lives and experiences through this medium, which gave them so much more power to “speak” for themselves.
If you are ever in San Francisco, you must stop in. It was life changing for me, leading me to earn a Graduate Certificate in Nonprofit Management last year — I was so inspired by this organization doing so much good for adults with developmental disabilities It has become a new dream for me to be involved with an organization like this.
If you aren’t going to San Francisco anytime soon, please visit the website, buy something, make a donation. They are doing amazing work, and the artists themselves will blow you away. (You can look up Peter Cordova, too, and check out his work!)
Some of us are a little obsessive about our to-do lists. Not only am I a piler, I am a lister. Without my list, I might just go insane (or at the very least get stuck where I am, not … Continue reading