Sunday Shout-Out: My New-ish Community

Since I started this blog in July, I have come across some really fantastic people who are also blogging about having kids with special needs, and they have been warm and welcoming.  I am beginning to have a sense of community I have been unable to find until now.  I am taking time this Sunday to highlight some of these people, and their favorite posts of mine, in the hope that you will go and check out their blogs.

Bec Oakley at Snagglebox

Leah Kelley at Thirty Days of Autism

Ellen Seidman at Love That Max

Ariane Zurcher at Emma’s Hope Book

Leigh Merryday at Flappiness Is…

Happy reading!

Lock Laces: The Greatest Thing Since Sliced Bread

The Boy is 10, soon to be 11, and he cannot tie his shoes.  We have tried over the years to show him how, but he’s just not interested.  And when he’s not interested, he’s not going to learn much.  … Continue reading

Our Story

Every family with autism has a “story” — not really about them, but about how they came to know about autism, and the battles they have fought, sometimes with insurance companies, sometimes with money, and always with their own emotions.  … Continue reading

Hey Autism Community: Enough Already!

I am always saddened by the divisive nature of the autism community.  It seems that we parents need to pick sides on plenty of issues, or be ridiculed, or even better “educated” by those who hold differing viewpoints.   For or against vaccines?    Autism Speaks?  Medication?  Jenny McCarthy?  Chelation?  We are even supposed to pick sides on whether the “Trip to Holland” allegory is touching or insulting.

Autism Awareness

Autism Awareness (Photo credit: Wikipedia)

When The Boy was first diagnosed (at age 5), I was handed a brochure, and told to contact the Autism Society of America.  And that was it.  I obviously needed more support than that, and looked to the Internet to join a group in which I could participate to the extent that I wanted to on any given day.  I joined a yahoo group of autism parents, and thought, “This will surely help.”  I couldn’t have been more wrong.  I was confused by all of the differing opinions on things I had never even heard about, and saw actual arguments unfold, in this group of adults whose supposed sole reason for existing was support.  I did not remain a member long.

I think we do our children a great disservice by not recognizing that just like autism is a spectrum disorder, the treatments, causes, documentation, and people attempting to assist us are all a part of a larger spectrum, as well.  There is no one treatment, no one cause, and no one group that can satisfy all of our needs.  If you think that, you are shutting the door to so many other possibilities for your child.

We must trust ourselves to do what is right by our children, as no one knows them as well as we do.  But we must not abuse each other in the process, as no one knows what we go through each day better than another parent of a child with autism.  We must agree to disagree so that we can move forward, creating better treatments, finding causes, and building better organizations for our community.  The divisive nature we have shown thus far is quite possibly holding our cause back, and it will continue to do so, unless we make a change now in how we treat each other.