policy | Simple. I Just Do.

You might be an autism parent if...The effects of a two hour delay last all day long Our school year has been riddled with two hour delays. And although my recent posts have been fairly centered on my (adverse) reaction to these, they do negatively affect The Boy, as well. As always, if he can expect it, and be prepped for it, the result is mitigated. But if it comes as a surprise, and is combined with other students being absent, teachers being late… It’s not very pretty, and this was the case this past Monday.

I understand why the district does it. They try very hard to avoid cancelling school because there is no such thing as a make up day in the South. They could very easily build in some days, as this is the second year in a row that we have had a dearth of these routine-upsetters, but that would take forethought and planning… and I digress. The problem is that our district encompasses many long miles of coastline, the east end of which is very susceptible to flooding during heavy rains. There is basically one road going in and out of town, and there is one very small school there. But if those sixteen kids can’t go to school, then the rest of the district has to close too. Even if there’s a chance they may not be able to make it, or the wind will be too strong, or there just may be water over the road… I am exaggerating, but only slightly.

The district needs to take a hard look at their policies. Two hour delays may not seem like much, but it only takes three to add up to a full day of instruction lost. Couple that with the detrimental effect on kids like The Boy (and neurotypical parents like me), and we are starting to have a serious problem.

Monday evening, The Boy asked when the next two hour delay would be. That’s not something I can predict, considering the last two were for no apparent reason. At that time, I pulled up my Weather Channel app, which said no chance of rain until next Tuesday. Now, as weather forecasts are wont to do, this Friday looks like rain and a chance of snow in the AM. If that forecast remains, you can bet there will be a delay. And now our job is to prep for that possibility…

If autism is on your radar, you are now aware of the recent forced deplaning of a family of a girl with autism by a United Airlines flight crew.

From the reports I have heard, including the mother’s own statements, it didn’t need to go down like that. The way it was handled increased the stigma of those on the spectrum, and created fear where there wasn’t any previously.

I think Mom, already in high-anxiety-panic mode, and trying to avert a meltdown tried to get some help, and used a poorly phrased warning to encourage the unhelpful and apparently untrained flight staff to be proactive. Unfortunately, it may have sounded like a threat, and anyone who flies with any regularity knows that any possible threats are “handled” immediately, with questions only asked after the fact.

And let’s not even go there about her being unprepared. Autism moms are not machines, and there are times when we are caught unawares by our kiddos. It seems that she did the best she could with what she had at hand. And asked for some warmed up rice.

I think the flight staff who is trained in how to de-escalate situations utterly failed in this instance. Maybe Mom came off as “that” mom, the demanding one, and they responded with what many of us in the service industry do when customers start to get snippy and demanding. We slip into, “I’m sorry. That’s our policy,” because we can, and we take a secret glee in being unable to help someone who is so clearly trying to abuse the system. But they failed to recognize that this was not an unhappy and demanding customer, this was a mom making a plea for the sake of her daughter and the comfort of the other passengers. They failed to listen when she said her daughter was autistic. They failed to do their jobs and do what they could to diffuse the situation.

They brought her the rice and probably immediately went to the captain, reporting a threatening passenger because they could, and because that would teach her to be demanding and make threats on a plane.

And the captain, trusting his staff, made the call.

But even he failed to do his job and investigate any further before making that call.

The flight staff failed all of their customers. They failed to listen, they failed to be compassionate human beings, they failed to diffuse the situation. But more than that, they violated this young person’s rights.

So my personal take is that yes, this flight crew needs training about passengers with special needs, as well as training in disability rights. (Many flight crews do – I can tell you stories about the many, many flights I’ve taken with The Boy by myself.) But they also need to go back to square one and be retrained about their primary job in that airplane – de-escalating any potential situation.