It is my birthday! Notice the exclamation point there? Yep. For someone fast approaching 40, you may not expect me to be at all excited about this anniversary of my birth, so very long ago. Except that I am. Here’s … Continue reading
It is my birthday! Notice the exclamation point there? Yep. For someone fast approaching 40, you may not expect me to be at all excited about this anniversary of my birth, so very long ago. Except that I am. Here’s … Continue reading
The Boy is 10, soon to be 11, and he cannot tie his shoes. We have tried over the years to show him how, but he’s just not interested. And when he’s not interested, he’s not going to learn much. … Continue reading
Lots of questions today. As usual, in the car.
The Boy:”Why is it just you and me?”
Me: “What do you mean? Are you asking why your dad and I got divorced?”
B: “Yeah.”
M: “Your dad and I just didn’t get along anymore. That happens sometimes.”
B: “Are you going to change your last name?”
M: “If The Man and I get married, that will probably happen.”
B: “Will my name change too?”
M: “That’s up to you. Do you want it to change?”
(no answer)
B: “Are you and The Man going to have any more kids? Will I get a brother?”
M: “Nope.”
B: “Why not?”
M: “The Man and I are too old to have any more kids. So it’ll be just you.”
B: “I’m going to have a bunch of kids. A whole pile.”
M: “Don’t you think you better check with your wife first?”
B: “I’m going to have a lot of kids.”
—
This entire conversation took place in the space of about one minute. Such heady stuff for a 10 year old. I sometimes find it difficult not to let my surprise (that he’s asking about these things) show. These are, of course, things that we have talked about before (OK, maybe not the “pile” of kids thing, but the other stuff). I think he finds comfort in the consistency of my answers. That’s my theory anyway. I hope he does.
The ex is infamous for cancelling plans. And due to the fact that he only sees his son for four weeks out of the year at most (this year it has been one week), when he cancels plans, it is … Continue reading
I enjoy writing. Always have. I took a creative writing course in college and had a great deal of fun, especially with poetry. Fun does not necessarily translate into good, so I apologize in advance. I’m not the type to subject my poetry on others, but when I ran across this poem that I must have written in a desperate moment, I’m guessing about three years ago (based on the Wubbzy reference), I thought it might resonate with others going through similar desperate moments.
Autism
Short
definition:
A neurological disorder…
Long
definition:
Something not quite
right. Speech delay
Speech therapy, Occupational
therapy (hypersensitive, hyposensitive,
Gross motor – Gross like large not like
yucky, fine motor) From flashcards
to reading two years ahead
Obsess, obsess, Obsession
for months (Pizza rolls every single
night for dinner) (Wubbzy AGAIN?)
laughing, joking, never gets
old. Still no empathy.
Logical, linear, Spock-like, must
follow the rules, follow the law, follow the
schedule. No deviation, no changes, no
surprises, no fire drills or we derail.
anticipate, anticipate, anticipate
lay the clothes out, take the meds, follow the
schedule. Nothing dirty, no holes, no stains,
hide the clothes when they get too small. Still
might come back to bite you,
kick you, pull your hair, scream, cry, lie
down in the middle of the aisle
suffer the stares, the whispers, the grandma shaking her head, “Mm, mm, mm.”
(must learn that Vulcan death grip – what happens
when he gets bigger?)
What happens next? One day
One day at a time, one day
one day
Breathe, exhale and relax.
Sometimes, I look back at the fun things I did as a kid and realize, “Holy crap. My son has probably never done that!” And I have a moment of disbelief, thinking, “This has nothing to do with autism, and … Continue reading
Every family with autism has a “story” — not really about them, but about how they came to know about autism, and the battles they have fought, sometimes with insurance companies, sometimes with money, and always with their own emotions. … Continue reading
I have always had the intention of being a working woman, and I have always had the intention of being a mother, so I guess I have always had the intention of being a working mom. I sincerely don’t understand … Continue reading
Therapists are big on forgiveness, aren’t they? The books I read post-divorce include forgiveness as a necessary step to healing. In my own case, it’s been hard.
I had so much anger before, during, and after the divorce. I placed all of the blame on the ex’s shoulders. I had so many stories to tell, and people listening would shake their heads, amazed that I had put up with it for so long. The day after my divorce was final, I remember sharing the news at work, and having others look at me funny because I wasn’t supposed to be so happy.
I reveled in my singlemomdom. There was so much freedom. Take a weekend trip with The Boy? Why, I could, couldn’t I? Buy a duvet cover with flowers on it? Yes, please. Fall asleep in a quiet house? Heaven. I also reveled in my anger and my indignation. The ex was clearly the spawn of Satan, and I had been a saint to last as long as I had.
As time passed, and upon more reflection, I began to realize my part in the downfall of our marriage. I realized that I had stopped communicating, that I had belittled him, that I had not been strong enough to fight him more on the big issues. And that maybe he wasn’t the spawn of Satan. Maybe.
Four years later, I am to the lovely point at which I am mostly indifferent. The thought of this person that I was married to for ten years rarely even crosses my mind, if at all. If it does, the thought is apathetic, with no real malice or anger. He can live his life as he pleases, and it has nothing to do with me.
Except when it does. When our little link is affected. When his actions hurt our little boy, I get angry, I blame, I shake with emotion. And this is why I am not, and don’t think I will ever be to the point of forgiveness. Lots of moms have this fierce emotion, this snarling-mama-bear-oh-no-you-di’nt reaction, that I think is even ferocious in those of us with kids with special needs. Because in many cases, our kids can’t express or process their emotions as well as the rest of us. Because our kids already go through enough. Because we go through enough. ENOUGH.
I can forgive strangers, because you can dismiss strangers as not knowing any better, being ignorant, or hateful, or stupid. But the ex is not a stranger, and he cannot be written off as ignorant.
It’s really hard to forgive someone who should be protecting his son as fiercely as I am.
And I don’t think I’ll ever be able to do it.
And I’m OK with that.
I’ll be honest, I skipped the big gym-speech, where parents are packed in like sardines, it’s hot, they talk about the same things every year, introduce the staff, and you can’t hear anything anyway because of all the people who … Continue reading