Got Your Summer Booked Yet?

One of the biggest anxieties The Boy has about moving is that he will miss his ESY program (that’s Extended School Year, if you weren’t aware).  ESY is a service that public schools provide to children who would otherwise take a drastic step backward in their academic and behavioral progress if they did not continue a type of school structure through the summer months.  Many districts keep this service on the down-low because if parents don’t know about it, and don’t ask about it, and they don’t happen to mention it at the IEP, they don’t have to have a program and pay for it.  I know districts that do this on purpose, intimately. Some districts even go so far as to tell parents that their children don’t need it, just so that they don’t have to have a program…

But The Boy’s district has a fabulous program, although it has scaled back even in the five years The Boy has attended, I’m assuming due to funding cuts.  In any case, he digs it.  Looks forward to it, and collects the T-shirts (even from years before he attended, thanks to an awesome gift from his amazing ASD teacher).  It’s like really, really laid back school.  But it’s structure, and school-like, so The Boy can’t get enough.

The Pink Shirt

Now, when we move, from what I can tell, there is nothing like that where we will be.  Plan B is a summer program offered either by the Boys and Girls Club or the City Parks and Rec department.  If it isn’t Boy-friendly (i.e. they’re not used to having special needs kids participate…), it soon will be. I can guarantee that.

I just hope we can get him in a daily program with enough structure that he will enjoy it, and maybe meet some new friends.  It breaks my heart that he won’t be able to attend ESY, but I hope with a little planning and forethought, we can find him the next best thing.

Wish us luck!

Full Inclusion = Extreme School

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For the life of me, I cannot figure out why educators insist on sameness.

We spend most of a child’s formative years insisting to them that they are special, they are unique, they are individuals with a right to their own ways of being.  And then they go to school…

They go to school and learn to become like everyone else, learning the same things, at the same pace, regardless of where their interests, talents, and abilities lie.  Every student must take algebra, every student must take foreign language, every student will be proficient in x, y, and z.

I’m not sure when the trend toward standardization began in schools, although I have a feeling it’s been there since the beginning, because it’s easier and cheaper than individualizing instruction.  The inherent problem with this is that kids are people, and there are no two people who are exactly the same.  Therefore, everyone has special needs.  I need a map if you are giving me directions, otherwise I will get hopelessly lost.  The Man learns by doing – you can give him all the instructions you want, but he needs to play Euchre before he can actually learn all the rules.  The Boy needs breaks and incentives throughout his day to get his work done.  And he needs alone time with an electronic device to decompress.

So why the soapbox post today?

Recently, I have heard some teachers in full-inclusion situations say things like, “They do just fine, until they don’t,” or “He’s on those video games as soon as he gets into the car after school.  I wish his mom wouldn’t use them as a crutch, a babysitter.”  In the full-inclusion world, any kid that visits the resource room more than 45 minutes a week is “severe”.

Think about some part of your daily work that requires all of your concentration and effort.  Now think about doing that task for six hours a day.

My kid with autism works so hard at being like the other kids in the classroom, and he has made great strides.  There are still times where he escapes, lashes out, or just isn’t absorbing much, but he is working really hard.  His ASD classroom provides a space for him to just be without the trappings of societal expectations.  Does that mean the learning stops?  NO, in fact, more learning goes on in that room because he doesn’t have to try to be someone he isn’t.  In the ASD room (some may call it a resource room), they have the ability to slow down, speed up, back up, and stop if necessary, providing those little pit stops on the way to encourage the work being done.  My kid with autism has thrived with this IEP recipe.

And maybe that kid with autism who is on the video games in the car is seeking respite from working his butt off in your classroom all day long.  Maybe his mom lets him have that time to be himself because that’s what’s best for him.

Is full inclusion bad?  No.  Of course there are kids who will thrive in that set-up!  We want our kids to have full access to the curriculum and the right to full inclusion if that’s what’s best.  But I’m not sure why it has to be all or nothing for every kid — It’s pretty rare when “all or nothing” is a good idea in education.

Our Story

Every family with autism has a “story” — not really about them, but about how they came to know about autism, and the battles they have fought, sometimes with insurance companies, sometimes with money, and always with their own emotions.  … Continue reading

Back to School Night

I’ll be honest, I skipped the big gym-speech, where parents are packed in like sardines, it’s hot, they talk about the same things every year, introduce the staff, and you can’t hear anything anyway because of all the people who … Continue reading