Time for the Truth

It’s common in the autism community to hear that as our kiddos get older, the challenges just change. They’re no more difficult or less difficult to handle, they are just different. That’s what you hear, and it’s supposed to be reassuring, I guess.

And maybe that’s the truth for some people. Maybe even most.

But I can’t say that’s been our experience. Things are harder now than they’ve ever been.

And maybe that’s not all autism’s fault. I’m sure the fact that I keep marrying losers who leave doesn’t help, and moving to a state that has substandard resources and a less than stellar educational system contributed. But at the end of the day, autism itself isn’t what has made things so difficult. It’s the anxiety.

Anxiety often shows up on the coattails of puberty, waving at you with a smug look on its face, saying, “I’m moving in and taking over now. Take a seat.” It shoves you down on the couch, flexes its muscles and commences to shattering and dismantling progress you’ve made, trust you’ve built, and your sense of safety.

The Boy is on medication for anxiety in addition to the meds he’s taken for a long time to help him focus at school. The medication helps. Most of the time. But there are times when the anxiety is too strong, and it combines with the confusion caused by being wired differently, and the roller coaster ride sets off. Every three minutes, a wild mood swing, sometimes accompanied by erratic behavior and lashing out, physically and verbally. And you just have to hang on for dear life until it ends, which is sometimes hours, sometimes days. And by “hang on,” I mean worry as hard as you’ve ever worried about your kiddo before.

And when things have calmed down, you find that you are a special kind of tired you’ve never been before. Physically and emotionally, a bone-weary tired that makes you fear going home because there might be a turnstile at the door, with another roller coaster ride waiting for you.

I’ve heard in the autism community that the anxiety lessens as they get older. And maybe it does for some people, maybe even most.

But what if it doesn’t for us?

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2 thoughts on “Time for the Truth

  1. My son doesn’t have anxiety but does have to extreme mood swings and behaviors you mention. It is exhausting for everyone. We pray every day that it’s a phase we will pass but like you worry that it isn’t.

  2. I’m so sorry things are so difficult for you both. I have no advice – Just sending you well wishes. In our house anxiety comes in waves but it’s small waves, not big crashing ones.

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